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Younger Daughter (YD) on the left, Elder Daugher (ED) on the right. Clothes by Grandma |
I gave my daughter a piece of advice in the form of a truism a few days ago. “If you do not put yourself first,” I pontificated, “no one else will.” A trite piece of advice but a sound one and I meant it. It is a working adage that I have tried to follow, off and on for sure, during my life, and a thing that I was sorry I did not do, if I had not been doing it Got that? Right.
JG and I are both in our eighties and, logically, moving
toward the end of our ability to live by ourselves and look after ourselves.
Much as I want to deny this, my creaking bones, lack of balance, frozen
shoulder, reduced blood oxygen level (and lack of patience about all of these)
are facts. It is hard work to make the bed, cook a meal, get showered and
dressed in the morning, sweep the porch, stay awake while trying to read. JG
has ongoing issues as well. Our daughters are doing some eldercare now and will
see it increase as time and infirmity go on. Thus the advice in para #1 above.
The cabin 'at the farm' |
I worried from time to time that the girls were missing out
on vital parts of growing up, on bonding with groups of friends on weekends,
movie dates, sports teams, even television (no hydro, remember). On the other
hand, they learned to navigate by themselves in scrub bush, cross-country ski, build
a fire in the snow, take their rowboat out onto the creek. They became, faute
de mieux, readers and players of board games. They packed their own weekend
clothes, packed their city activities into five days a week, and also learned
to rely on each other. That they fit their lives into what we, their parents
wanted to do, was not entirely a bad thing.
The year that the ED was in Grade 13 my father decided to
move himself and my mother from their large Windsor home to an Ottawa bungalow,
a short drive from where we then lived. I don’t know if I have mentioned that I
am an only child, but that I am is pertinent. My mother was fragile both
physically and, increasingly, mentally, and my father needed help in looking
after her. I found them the house, facilitated the move and, in self defence,
enrolled in a two-year certificate program at our local community college. My
father did what he could to cushion me by hiring help summer and winter for
their large yard. (They considered apartments when planning but my mother
needed flowers and grassy space.) My mother did enjoy my reports of what I was
learning and it gave me hours in the day that she perceived to be my own.
I passed that course and actually (and at my age, too) got a
job in the industry, but my mother was really struggling and dad could not
cope. I got calls at work; I lost weekends. I quit the job and took on eldercare.
At the end, at one point I was sleeping on a rug beside my mother’s bed with a
light shining on me so that she could see I was there. Luckily for her and all
of us, her physical health broke down and she died before the mental stress
became unendurable. My father took about a year to regroup, then moved himself
into a seniors’ residence and installed his childless sister in the next
apartment over. I became a chauffeur when necessary, but dad managed himself
and his sister mostly solo. I started a home-based business in the intervals.
The house JG built 'at the farm' |
I miss, profoundly, being that busy person. Bad health,
partly fueled by a lifetime of bad habits, has pretty well parked me in an electrically
controlled recliner chair in the living room or here, at my computer, where I
feel still in charge. We are very lucky to have the financial resources to hire
help for what we cannot do ourselves. (Or we can hire help once we admit we can’t
do it; some problems in this regard.) Our daughters take the time to check on
us by phone and in person at a level I really hope is not too onerous, and their
father has the odd job for them to do (on the roof, for instance) when they
visit. Not too demanding yet.
If I am going to be honest here, I would have to say that I
resented getting pulled into a lot of care for my elders. I knew it had to be
done, I knew I had to do it, I even wanted to do it, but I still got angry
about being ‘on call’. Or, I think that was at least part of the anger. The
rest was, I believe, anger at fate. Anger at illness that turned my vital,
intelligent, funny mother into a whiny child. Anger at age that robbed my
equally funny and independent aunt of her self-reliance. I can identify a mixture of annoyance and
amusement at my male-dominant dad’s assumption that whenever he made an
appointment, I would be available to take him to it. Maybe the problem was
being taken for granted, for coming second in the calculation of what should
happen.
Unless and until age and infirmity rob me of my personality,
I swear I will do my best not to take my daughters for granted. And to manage
so that they can put themselves first.
Those boys are so cute! I hear you with not wanting to be a burden.
ReplyDeleteIn spite of the short hair and trousers, that is the younger daughter left and elder daughter right. The outfits were from their grandmother and they were both very tired of being photographed. Note that both trousers are very light coloured, not good for tree climbing and general mayhem. I have a story about that, and will tell it, soon.
DeleteWe have one child, a daughter, who is raising four children. I don’t want to be a burden for her but who knows what lies ahead. My husband and I will enjoy life as it is now and see what comes. Plans are in our near future.
ReplyDeletePlans are good. I am trying to get some in place. Lovely to have grandkids - if I recall correctly, there is also a dog? Quite a handful, but fun for you both. I enjoy your life with birds, admiring your photos a lot.
DeleteThe more I learn about you, the more I admire you. You’ve done as best you could what you thought that you should, and you shouldered quite a load. Like you, I do not want to assume too much from my daughter.
ReplyDeleteAC, I try. And I confess to pushing the daughters a bit not to 'mother' me. At least there are two of them. And my granddaughter has two brothers, so will have some help with dad care, come the day.
DeleteMy attitude as well Mary. My local daughter assumes she will be my caregiver when the time comes, but I'm trying to stress to her that this will not do. She can be the primary decision maker but the business of it all will be delegated. This current illness I'm dealing with has me thinking about it all too.
ReplyDeleteIndeed, when you have an illness, it really brings it home. I was in the Heart Institute in Ottawa and my daughters visited, brought stuff and generally worked really hard. You can tell them to relax, but they may not listen. We have the decision maker thing in writing, Power of Attorney for Personal Care. And have had the discussion about what to decide. Not an easy conversation, but good to have done it.
ReplyDeleteI'm sorry that this was your load and responsibility. I completely understand. Rick and I have had many talks with our sons about our care and how we don't want it to be their job. The continuing care of my 95 year old mother with Alzheimer's is such a burden already; my brother refuses to hear of any alternative. That will never, ever be me.
ReplyDeleteI knew you have your mother's illness as a big problem. It is difficult - you want to do it but at the same time you are resentful. I have never solved it. How not to be a burden - what my dad did was perfect, but you can't plan on going to sleep in front of the TV and not waking up. Pity.
ReplyDeleteLuckily we can talk to the offspring about it. That is a real plus and I am so glad to hear that you can do that.
You speak plainly about the weight of responsibility, the quiet sacrifices, and the fierce love that underpins it all. It’s clear you did what was needed, even when it was not easy, and your pledge to your daughters is both generous and brave. There’s dignity in your words, and a legacy of resilience that they’ll carry forward.
ReplyDeleteA generous comment, and so beautifully phrased. Thank you for this; I should put it at the top of what I wrote as a summary, allowing me to erase some of the babbling. You are so very skilled with your words - I am in awe.
ReplyDeleteMy late mother was adamant in stating that she wanted to remain in her own home even when her health was failing. We lived out of state but would visit and help. She managed to abide by her decision with the help of part time caregivers and although she died in a hospital at age 93, where she was admitted after collapsing in her own home, we know she really died at home per her wishes.
ReplyDeleteI think when people say they want to die at home, they mean while they are living at home; I have summoned an ambulance several times for relatives and firmly driven more to the hospital. Once my mother was admitted, she seemed to relax and accept the care and the surroundings. I think, even with the amount of dementia she had, she recognised the hospital as a 'safe' place in a strange sort of way. And my aunts were much the same. it is difficult to know what to do if you are the caregiver as you worry about accidents and falls, etc etc, but also difficult to know if your are the one trying to assess if you can still live in you home. I am hoping to hang in here, as much for my husband who loves this place as for me. We will just have to assess as things progress.
ReplyDeleteYou have had a lifetime of giving, Mary. I am in awe, and asvfar as feeling resentful, I appreciate your honesty about that. You had many hard choices to make, and gave up a lot for your elders. And now it is time to face those hard decisions for yourself. I have been thinking about these things too, although I have, I think, more years to think about it than you do. But who really knows? Anything can happen at any time.
ReplyDeleteMy mother expected me to be her caregiver because I was the oldest daughter--- even though I lived furthest away, had a fulltime job and a young son still in school. And there were 4 sisters within 20 minutes of her, some of them not even working.
The stress and resentment at her assumption was real. I loved her dearly but did not do what she wanted...for which of course I felt guilty!
I admire your determination not to be a burden on your daughters. Even if they are willing, you know the cost of such care on a person's life. Of course if it comes to it, they will be there for you. Like you, I want to put off that time of dependency as long as possible.
It is hard, and frightening, truthfully. Luckily the daughters have good common sense and a lot of ideas. It is going to hurt to leave here, though, and we hope to make it last as long as possible, the definition of "possible" being jointly determined with the daughters.
ReplyDeleteYes, guilt is part of the whole thing. For the things you did not do, and the feelings of anger for things you felt were not called for. Your sisters - my cousin, who was closer to the needy aunt that I was and who worked hard at being oblivious to the whole thing.
I have given this a lot of thought too. I have 2 sons, both with young families, and both live some distance away from me. So far I have managed to handle various health problems without needing a lot of their help, but I know the day will come when I'm not able to live here by myself. And I fervently hope I will never become a burden to them.
ReplyDeleteIt does take thought. And worry. I lived at an all day drive distance from my parents, and had teenagers when the health problems became serious. But I coped, and you and your sons will cope, as will my daughters. Because that is what good families do. We want to put as much as we can in place so that we have the framework ready for when it is needed. I am researching, keeping a list of phone numbers and names, hoping, as you do, never to be a burden.
ReplyDelete